Osteogenesis Imperfecta Awareness

Hi everyone, Today’s post is the awareness of Osteogenesis Imperfecta OI for short but is also known by the term Brittle Bone Disease. My Story OI is very close to my heart as my eldest daughter was born with this condition. She had her first break at ten months old, I was quite naïve as … Continue reading Osteogenesis Imperfecta Awareness

Endometriosis Awareness Month

Hi everyone this month is Endometriosis Awareness Month. I'm doing a post about it, as it is something close to my own heart. My eldest daughter suffers from this, and I must admit it is unbearable to see her go through that amount of pain every month, sometimes it just seemed to go on forever. … Continue reading Endometriosis Awareness Month

Nystagmus Awareness Day

Hello everyone. Todays post is going to be about raising awareness on nystagmus. This is something that is very close to my own heart as I suffer with nystagmus. It makes it very hard to concentrate on anything, I love to read, but I can't do that for very long as it gets very blurry. … Continue reading Nystagmus Awareness Day

Ataxia Awareness Day

A Date To Remember: Today is International Ataxia Awareness Day. This is something very close to my own heart as I suffer from a form of it called Cerebellar Ataxia. I was born with this condition, even though at the time I was diagnosed as having epilepsy, which puzzled doctors immensely as I never had … Continue reading Ataxia Awareness Day

ME/CFS Awareness Part 2

Why ME/CFS? I am writing this awareness as there is still not a lot known about Myalgic Encephalomyelitis, also known as Chronic Fatigue Syndrome, but it is also referred to as ME/CFS for short. It is characterized by a range of neurological symptoms, that causes muscle pain with intense physical and mental exhaustion., with relapses … Continue reading ME/CFS Awareness Part 2

ME/CFS Awareness Part 1

Outside Looking In What is it really like to live with Myalgic Encephalomyelitis also known as Chronic Fatigue Syndrome, it also goes by ME/CFS for short, knowing that you will never get the chance to do all the things that you once did, and have the energy that you once had. I've seen first-hand what … Continue reading ME/CFS Awareness Part 1