Tag Archives: Raise Awareness

Now You’ve Recovered

When you recover, what will you do?
When you recover, will you still be you?
Will you be stronger, will you be new,
When you recover from what you’ve been through.

Can life get better than it was before?
Will you realize your dreams and improve your score?
Will people still remember your name,
Or will they forget you because they’re ashamed?

Life in recovery may not be the same.
The rules may have changed in this brand new game.
You can pick up the pieces and make a new start,
And courage and hope keep you from falling apart.

The world all around you seems different and changed.
Things that once were now seem out of range,
But you can recapture your life and fulfill
The dreams that were lost when you took ill.

The journey to wellness takes time and is long,
And those that get well are exceptionally strong
For depression can kill, but you have survived.
Your goal to recover has kept you alive.

Now you’re recovered, what will you do?
You suffered and conquered and saw it through.
Back from the black and abyss of despair,
It is time to move on; it is time to care.

By Charles A Cino

Have a great week! Be safe and talk.

All Alone

Hi everyone. I have written this poem for all those, who are or have some time in their lives have suffered from PTSD, depression or anxiety and feel all alone, with no-one to talk too. You are not alone, there is someone you can always talk to, you will only open up to someone you feel comfortable with, it will be then you will start to slowly recover. It will not happen overnight, but if you are up for one last fight, fight to live. This is PTSD day and month. Make someone else’s lives matter, make a difference to someone’s life.

I feel all alone,
As I suffer in silence,
No one to talk to,
I don’t know what to do,
I try to count sheep,
As I cry myself to sleep,

The pain inside,
Is so real,
I wish I did not feel,
All alone can be rough,
For the ones…
That are so tough.

As I struggle all alone,
I am now without a home,
But no-one knows
How it goes,
The images that I re-live,
I don’t think I could forgive.

The guilt that I feel,
For me is a big deal,
I am left wondering why,
I was the one that had survived,

How can I tell you?
That I feel so blue,
And broken up inside,
Instead, I have to…
Hideaway my tears.
And push away my fears.

As I lay upon my bed,
Nothing has to be said,
I just keep it all in,
Then… I will never win,
Someday I will break
For I will never wake…

Don’t seal your fate,
And wait…
Until it is too late,
Talk to someone,
On how it began,
Then you can start forgiving,
And begin to start living.

See you all next week!

Nystagmus Awareness Day

Hello everyone. Todays post is going to be about raising awareness on nystagmus. This is something that is very close to my own heart as I suffer with nystagmus. It makes it very hard to concentrate on anything, I love to read, but I can’t do that for very long as it gets very blurry. The more I try to concentrate the worse it gets and the pain it causes my eyes. It is very frustrating not being able to see things properly. My eyes oscillate from side to side, going fast enough to make my vision blurry.

Facts About Nystagmus

Nystagmus is a condition that affects your vision, in which causes the eyes to make repetitive, uncontrolled movements. It often results in reduced vision and depth perception, which can also affect balance and coordination.

Involuntary eye movements can occur from side to side, up and down, and rotate in a circular pattern. As a result, both eyes are unable to steadily view objects. People whom suffer with nystagmus might nod and hold their heads in unusual positions to compensate for their condition.

Usually, nystagmus can be an underlying symptom of another eye or medical problem. Stress and fatigue can make nystagmus a whole lot worse. Although, the exact cause is often unknown.

Here is the different forms of nystagmus are as follows:

  • Congenital Nystagmus: You show signs of this from birth. This is where your eyes start to move together as they oscillate (swing back and forth like a pendulum).
  • Infantile Nystagmus: Between the ages of 2 to 3 months of age you would often start to develop infantile nystagmus. The eyes would move from side to side in a horizontal way. It can also be associated with other conditions, like undeveloped optic nerves, albinism, congenital cataract, and congenital absence of the iris ( the colored part of the eye).
  • Spasmus Nutans Nystagmus: This usually happens between the ages of 6 months and 3 years and will improve on its own, usually between the ages of 2 and 8 years of age. You tend to find that children with this kind of nystagmus often tilt or nod their heads, and their eyes will move in any direction. This type does not usually need any treatment.
  • Acquired Nystagmus: You later develop this in childhood or adulthood. The cause of this type of nystagmus is often unknown, but it could be due to the central nervous system and metabolic disorder or drug and alcohol toxicity.
  • Manifest Nystagmus: This is present at all times, latent nystagmus only occurs when one eye is covered
  • Manifest-Latent Nystagmus: is always present, but made worse when one eye is covered over

What Causes Nystagmus?

The most common cause of nystagmus is by any type of neurological problem, to which is present at birth or can develop in early childhood. Acquired nystagmus occurs later in life, can be the symptom of another condition or disease, like a stroke, multiple sclerosis or trauma.

Other Causes of Nystagmus Include:

  • Albinism.
  • Central Nervous System Disease.
  • Congenital Cataracts.
  • Inflammation of the Inner Ear.
  • Lack of development of normal Eye Movement Control early in life.
  • Medication such as anti-epilepsy drugs
  • Very high refractive error. For example, near-sightedness (Myopia) or Astigmatism

Can Nystagmus be Treated?

There are several things that can be done to help relieve it, sometimes it works and other times it doesn’t.

  • Surgery reduces the null positions, lessening head tilting and improving cosmetic appearance.
  • Drugs such as Botox or Baclofen can reduce some nystagmic movements, the results are usually temporary.
  • Eyeglasses and Contact Lenses can help with nystagmus see better, but have found that contact lenses to be the superior alternative for many with nystagmus.

See you all next week

Ataxia Awareness Day

Internatonal Ataxia Awareness Day

A Date To Remember:

Today is International Ataxia Awareness Day. This is something very close to my own heart as I suffer from a form of it called Cerebellar Ataxia. I was born with this condition, even though at the time I was diagnosed as having epilepsy, which puzzled doctors immensely as I never had any fits. I finally was told in my thirties after seeing countless other neurologists, that I did come upon this specialist that he had only seen one other case with my symptoms, it was then that he wanted to do numerous test on me. It was then that I was told I had cerebellar ataxia.

The Ataxia I have is degenerative. My symptoms will eventually get worse, but I always tell people that I don’t want pity as there are others that have it worse. There are several different types of ataxia and each one as there own difficulties, this awareness is for everyone that suffers with it. For me, my ataxia can last for a few hours to sometimes days, it’s very draining and takes all my energy to fight it. With Cerebellar Ataxia, I have repetitive eye movement called Nystagmus, sometimes it gets difficult to see as my eyesight will become blurry.

 

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What Are The Types:

The word ataxia actually means “without coordination.” Ataxia is a movement disorder that is caused by problems in the brain. With ataxia, you have trouble moving parts of your body, as it doesn’t work the way you would like it too. Also with ataxia, the muscles in your arms and legs might move when you don’t want them to.

Ataxia isn’t a disorder or a disease itself, it is a sign of other underlying disorders or other diseases. Doctors have discovered that there is anywhere from 50 up to 100 different types of ataxias. They are grouped into specific categories that are based on what causes them or based on which part of the body that they affect. Ataxia may be temporary or progressive and permanent. Spinocerebellar ataxia is one type that is permanent ataxia.

Interntional Ataxia Awarenea Day

Types of Ataxia by Affected Area:

Ataxia is caused by damage to different areas of the central nervous system. Doctors categorize it by the specific part of the brain most affected, including:

  • Cerebellar (brain)
  • Sensory (nerves)
  • Vestibular (ears)

Cerebellar Ataxia:

The cerebellum is part of your brain that takes charge of your balance and coordination. When part of your cerebellum starts to erode or wear away, you can develop cerebellar ataxia. Sometimes it can also affect your spinal cord.

Symptoms of cerebellar ataxia include:

  • Behavior or personality changes.
  • Changes in your voice.
  • Dizziness.
  • Fatigue.
  • Headaches.
  • Low muscle tone.
  • Muscle tremors.
  • Slurred speech.
  • Trouble walking.
  • Wide gait.

Sensory Ataxia:

Sensory ataxia is the result of damage you have to the nerves in your spinal cord or your peripheral nervous system. That is the part of your nervous system that is outside of the brain and spinal cord.

When you have sensory ataxia it affects the sensations in your feet and legs, that is caused by nerve damage, it doesn’t send the relevant information back up to the brain, telling you where your body is in relation to the ground. The alternative word for it is called Proprioceptive ataxia.

Symptoms of Sensory Ataxia Include:

  • Difficulty touching your finger to your nose with closed eyes.
  • Inability to sense vibrations.
  • Trouble walking in the dim light.
  • Walking with a “heavy step,” or stomping when you walk.

Vestibular Ataxia:

Vestibular Ataxia affects the vestibular system. This system is made up of the inner part of your ear and ear canals, which contain fluid. They can sense the movements of your head and help with your balance and spatial orientation.

When the nerves in your vestibular system wear away, you can have the following problems:

Symptoms of Vestibular Ataxia Include:

  • Blurred vision and other eye issues.
  • Nausea and Vomiting.
  • Problems standing and sitting.
  • Staggering when you walk.
  • Trouble walking in a straight line.
  • Vertigo, or dizziness.

I want to say thank you for taking the time to read this.